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Newly Diagnosed Pack: Information about early pancreatic cancer that can be removed by surgery (operable cancer)
Our newly diagnosed pack contains key publications if you have just been diagnosed with pancreatic cancer. This pack is for people who have been diagnosed with early, localised cancer (stage 1 or stage 2), or have been told they can have surgery to remove the cancer. You might hear this called operable cancer.
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Pancreatic cancer that can be removed by surgery. A guide if you have just been diagnosed
This booklet is for you if you have been diagnosed with early, localised pancreatic cancer (stage 1 or 2), or told you can have surgery to remove the cancer (operable cancer).
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Newly Diagnosed Pack: Information if you can’t have surgery to remove pancreatic cancer (inoperable cancer)
Our newly diagnosed pack contains key publications if you have just been diagnosed with pancreatic cancer. This pack is for people who have been diagnosed with locally advanced (stage 3) or advanced (stage 4 or metastatic) cancer, or have been told they can’t have surgery to remove the cancer.
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Pancreatic cancer if you can’t have surgery (inoperable cancer). A guide if you have just been diagnosed
This booklet is for you if you have been diagnosed with locally advanced pancreatic cancer (stage 3) or advanced cancer (metastatic or stage 4), or if you’ve been told you can’t have surgery to remove the cancer.
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Support for people affected by pancreatic cancer: a leaflet about our services
This credit card sized fold-out leaflet explains the different ways we can support people affected by pancreatic cancer, including our Support Line, information, online forum and support sessions. This Z-card is included in the newly diagnosed pack.
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The care you should expect and receive: Patient Charter
Our patient charter explains the standard of care everyone with pancreatic cancer should have. You can use it as a guide to what you should expect from your care. The patient charter is included in the newly diagnosed pack.
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Diet and pancreatic cancer booklet
This booklet explains how pancreatic cancer can cause problems with diet, eating and nutrition. It includes information on how to manage these problems, including how to take pancreatic enzyme replacement therapy. This booklet is included in the newly diagnosed pack.
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How to manage problems with digestion using pancreatic enzyme replacement therapy (PERT)
This fact sheet explains how capsules called Pancreatic Enzyme Replacement Therapy (PERT) can replace the enzyme your pancreas normally makes. PERT can help you digest your food and manage symptoms like weight loss, diarrhoea, tummy pain, bloating, wind, and indigestion. It can make a big difference to how you feel. Common brands include Creon, Pancrease, Nutrizym and Pancrex.
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Do you have problems digesting your food? Z-card
This credit card sized fold-out leaflet explains the symptoms you might get if you have problems digesting your food. These include weight loss, runny poo, tummy pain and bloating. The leaflet explains how to get help if you have these symptoms, and how they can be managed with capsules.
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Food and enzymes diary
You can use this diary to record what you have eaten, the pancreatic enzymes (pancreatic enzyme replacement therapy) you took, and any changes to your digestive symptoms. You might find this particularly useful when you first start taking pancreatic enzymes, to help you work out how many you need to take with different foods.
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Caring for someone with pancreatic cancer: information for families and carers
This booklet is for family members of someone with pancreatic cancer. It includes information on managing symptoms and side effects, and accessing the right care and support. This booklet can be included in the newly diagnosed pack.
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Fatigue and pancreatic cancer
This booklet is for people who have fatigue. It explains what fatigue is, what causes it, how it can be managed – including things you can do yourself, and the support available.
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Diary for managing fatigue
This diary can help you monitor and manage fatigue. Download and print it, or fill it out and save on your computer.
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Pain and pancreatic cancer booklet
This booklet explains what causes pancreatic cancer pain, the different types of pain, and how it is managed.
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Pain medicines record card
Print off and use this record card to help you manage your pain medicines.
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Diabetes if you have pancreatic cancer fact sheet
This fact sheet is for anyone with pancreatic cancer who has diabetes. It explains what diabetes is, why people with pancreatic cancer may have diabetes, and how it is managed.
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